When the Brain Fills in the Gaps: The Strange World of Charles Bonnet Syndrome

When the Brain Fills in the Gaps: The Strange World of Charles Bonnet Syndrome

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Paper presentation

Presenter(s):

Karen Denton, Low Vision Centre of Learning, South Africa

Abstract

Charles Bonnet Syndrome (CBS) is a vastly under-recognized and frequently misdiagnosed condition, despite its significant impact on those who experience it. Affecting individuals with deteriorating vision, particularly within the ageing population. The lack of awareness surrounding this condition leads to unnecessary anxiety, misinterpretation as cognitive decline or mental illness, and even inappropriate treatment.

But what exactly is CBS? Who is at risk? Why does it occur, and why is it so often overlooked? This discussion will explore the prevalence, challenges, and misconceptions surrounding CBS, emphasizing the urgent need for greater awareness among healthcare professionals, caregivers, and the wider community. By shedding light on this “elephant in the room,” we can improve diagnosis, provide better support for those affected, and address the unnecessary distress caused by this misunderstood condition.

Bio(s):

Always a keen student and teacher, having a toddler diagnosed with Type 1 diabetes set Karen on a pathway that shaped her life. Having completed studies in General Nursing, Midwifery, Operating Theatre, Nursing Administration, Nursing Education, Psychiatric Nursing, and a Degree in Psychology, Karen was uniquely poised to utilize the varied skills for a thirty plus year career in Diabetes Education. During this time, lecturing internationally, Chairing Diabetes South Africa, Pan-Africa Diabetes Educators (5 years) and The South African Diabetes Educators (8 years) proved stimulating and a valuable basis for a move to the Middle East for a further 8 years where she continued her studies. On returning to South Africa, she re-integrated into the medical field by being a founder member of the The Low Vision Centre of Learning, and with Retina SA where she functions as the Lead in Education and Advocacy.