
Open the Doors 2030: A Global Human Rights Movement for people with dementia
Presenter:
Nicole Smith, Community Home Australia, Australia
Abstract
The global population of individuals living with dementia is projected to exceed 74 million by 2030, with approximately 1.29 million residing in nursing homes worldwide. Despite this significant demographic, many continue to experience systemic neglect and human rights violations, including confinement, lack of autonomy, and social isolation. In response, the Open the Doors 2030 (OTD2030) movement emerged in May 2024 as a transformative human rights initiative aimed at redefining dementia care and advocating for the dignity and rights of those affected.
OTD2030 is a global alliance that unites over 700 members across more than 25 countries, encompassing healthcare professionals, caregivers, researchers, and individuals with lived experience. The movement fosters an inclusive platform for knowledge exchange, collaboration, and advocacy, with a mission to ensure that all people living with dementia are treated with respect, included in the community, and celebrated for the person they are by 2030.
Central to OTD2030’s approach is the dismantling of traditional care ecosystems that often prioritize institutionalization over person-centered care. The movement challenges practices such as confinement, the use of physical restraints, and the marginalization of individuals based on cognitive impairment. By promoting models that emphasize autonomy, freedom of movement, and community integration, OTD2030 seeks to create environments where individuals with dementia can thrive and maintain their dignity.
Through bi-weekly online meetings, the movement showcases thought leaders and practitioners who share innovative practices and research findings. These sessions serve as a catalyst for action, encouraging participants to implement changes within their own communities and care settings. Additionally, OTD2030 provides resources and support for individuals and organizations committed to advancing human rights in dementia care.
The urgency of OTD2030’s mission is underscored by the escalating global prevalence of dementia and the corresponding need for systemic change. By 2030, the total cost of dementia worldwide is projected to reach $1.3 trillion, highlighting the economic and societal imperative for reform. OTD2030 advocates for the recognition of dementia as a human rights issue, urging policymakers, healthcare providers, and communities to prioritize the well-being and rights of individuals living with dementia.
This abstract outlines the foundational principles and objectives of the Open the Doors 2030 movement, emphasizing its commitment to fostering a global community dedicated to the human rights of individuals living with dementia. By promoting inclusive, person-centered care and challenging entrenched practices, OTD2030 aims to create a world where individuals with dementia are valued, respected, and empowered to live fulfilling lives.
Bio(s):
Nicole Smith is a Registered Nurse, Gerontologist, dementia advocate, and changemaker in the aged care sector, known for championing empathetic, enabling, and relationship-centred models of care. With a strong clinical background and a deep commitment to improving the lives of older adults, particularly those living with dementia, Nicole brings a unique blend of frontline experience and visionary leadership to her work.
Her experience as a clinical first responder with Aspen Medical—serving in facilities across four states during the COVID-19 pandemic—gave her firsthand insight into the systemic challenges facing aged care in Australia. These experiences fuelled her mission to reimagine how we care for our elders.
Nicole is the co-founder of Community Home Australia (CHA) alongside Dr Rodney Jilek. Together, they launched CHAIR, an all-inclusive resort in Indonesia offering dignified, community-based living options for older people, particularly those with complex needs.
She is also the driving force behind the global campaign #OTD2030, which advocates for the human rights of people living with dementia. In under a year, it has gained support from over 25 countries.
Nicole’s work is guided by compassion, evidence-based practice, and a belief that ageing with dignity and purpose should be a universal standard.